
The whitehouse family is urging support of on friday october 1,when people are invited to wear jeans to work in return for a donation to the charity which funds care and services for children like annabelle and their families.
Unbeknown them, both her parents paul and sonia were carriers of a gene that meant they had a one in four chance of passing the condition onto their children.
As well as being creamed and bandaged bandaged six times a day, annabelle has been on the receiving end of ignorant stares and comments.
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